Last week, I had the
immense and heart-piercing privilege of taking part in the launch party for My Tree Called Life: Writing and Living Through Serious Illness, a book published by Turning Point of Kansas City that I edited. The anthology brings together the writings of close to 30 writes living with serious illness — cancer, parkinson’s disease, brain injuries, diabetes and more — whether they are the one diagnosed with the disease or a close caregiver. The writings people contributed come from writing workshops I’d led at Turning Point over the last three years, all designed to help people express whatever life was showing them about who they are and what they’re living through.
The book was a true labor of love, and I send great gratitude to Cathy Pendleton, who coordinates adult programming at Turning Point, and also many others on staff there who did such an extraordinary job in helping us put all these strong words into publication. I also am continually inspired by the writing of the workshop participants who proved what Pat Schneider has written in many of her books: when we write in our own words, it’s powerful. Finally, Turning Point itself is an amazing organization which provides all kinds of services for people — from babes in arms to elders — when facing serious illness. Turning Point: A Center for Hope and Healing offers extensive programming for children and adults — classes in cultivating resiliency, knitting, yoga, writing, mindful movement, nutrition, relaxation, Chinese medicine and Jin shin Jyutsu.
Here’s an excerpt from the Introduction I wrote to My Tree Called Life:
Because we write against the backdrop of caregiving for fragile parents 24/7, not knowing if the dopamine will allow for easy walking today, bone scans and heart procedures, scared children or distant siblings, friends who help and friends too busy or frightened to show up, and the vast uncertainty of living with serious illness, attendance can shift radically week to week. Sometimes it’s hard to write more than a few words, and sometimes it’s hard to stop writing. Always, however, we find deep value in simply witnessing one another, witnessing our own words. Words of truth, sometimes words of hope and always words of life.
When I get home that night, my husband asks me how it went, and when I tell him, he says, “Doesn’t it hit on all your own cancer issues to do this work?” He thinks it might depress me, but no, it does the opposite. Maybe some of this has to do with what the woman said about how her dying helps the ones of us not so actively at the end of our lives (or so, we think) cultivate perspective, give up sweating the small stuff so much. But I suspect it has more to do with the courage I witness, week after week, in all the workshops I do: the way that people are willing to take great risks in what stories they write and tell; how the veneer of what we think keeps us safe is gone in such workshops, and what really matters is unearthing meaning – clearing the obstacles out of the way, including fear and doubt, insecurity and low confidence, to create something simply to feel more alive in the process of creation.
It also has something to do with the stories I hear and the stories I witness – the woman facing advanced diabetes opening the sugar-free chocolates another participant brings us one week when we’re having someone’s death-by-chocolate prize cake.
The man who reads a poem he wrote to his wife, who just went through breast cancer treatment, about how strong she is, crying throughout his reading and through his reading of everything he wrote while reminding us, “Hey, I’m an engineer! I never cry, and in this workshop, I can’t stop.”

The woman who’s balanced her precarious life around extreme chemo for five years says the most encouraging and insightful things about the writing of others in the group. When I ask her what the class is like for her, she writes me about how she noticed many surprises in how she ended each story or poem she wrote, “I don’t believe we were writing toward specific endings. They just happened serendipitously and wonderfully.” She reads me one of her favorite endings, “Every fiber of me begs to wake up—to wake up, electric, stunned, and newly alive.”
In such an ending, I hear a beginning: how to begin to live life far more alive, far more immersed in the energy of being here and now. Of course the writing the participants do leaves behind legacies for their family and friends: inside glimpses of how they saw and loved the world. But it also continuously shows those of us in the class that living with serious illness doesn’t mean losing yourself; on the contrary, living with such challenges can – through the magic of writing and speaking stories and images into being – bring us home, even at the turning points of our lives, to who we always were. With the publication of this book, we now share our homecoming with you in hopes of these words helping you find your own way through life’s turning points.
Photos of people by Joann Lesh (who is reading in one and hanging out with me in another). The book’s beautiful cover painting is by Lorelle Mennel, who participated in the Turning Popint class, “Living Your Question Now: Finding One’s Joy Through Painting.” You can purchase a copy of the book at Turning Point’s website.
Monday night I experienced three hours of sitting in a state of pure musical prayer at one of the best concerts of my life: Leonard Cohen plus eight world-class musicians performing at the gorgeous Midland Theater in Kansas City. Despite so many songs of having our hearts ripped open and the existing coming demise of politics and society, I felt such kindness and compassion, such presence and humor, such grace from the man who said in one of his songs, “I’m just a little Jew rewriting the bible.”
“Anthem,” and particularly the chorus, “Ring the bells that still can ring/ Forget your perfect offering/ There’s a crack in everything/ That’s how the light gets in” after he told us, “So much of the world is plunged into darkness and chaos.” I found myself crying in the cheap seats from which Leonard was the size of my thumb, but I could still hear most of his words and see all his gestures: the lifting of his hat when he bowed, the way he waltzed across the stage, the continual return to his knees to pour his song into the mic as he sang.
England who, when they did a solo for “If it is Thy Will” that sounded like the most lyrical bells in the world ringing. Sharon Robinson, another singer and one of Leonard’s collaborators on many songs, also did a dazzling solo.
Baby Rides the Short Bus: The Unabashedly Human Experience of Raising Kids with Disabilities, edited by Yantra Bertilli, Jennifer Silverman, and Sarah Talbot, features essays on raising kids with a variety of physical and emotional, visual and invisible, disabilities. “This is the most important book I’ve read in years,” writes Ariel Gore, author of The Mother Trip, who recommends this book for anyone, whether “subject or ally.” The anthology covers topics such as navigating acronyms and diagnoses, finding respect and support, balancing family needs when one child has a disability, and all kinds of resources.
— back when it was in New York City — I was dazzled especially by one display: a ride into darkness that opened up to light panoramas of dolls dressed in clothing from dozens of countries, all singing in various languages, “It’s a Small World After All.” Maybe it was how the dolls were illuminated in the darkness, or how there were dozens of them. Maybe it was their little Flamenco or Native American or Mongolian costumes, but for whatever reason, that display stayed with me as the most amazing thing I had seen up to that point in my life.
. Not only were the horses the same breed, but the same immediate family, and of course, we then discovered a well-traveled Lubeck (near Gesa’s home), Germany and Kansas route, filled by several horse lovers and breeders who all knew each other (the woman who owned the stable where Sally’s horses live also knows Gesa’s uncle).
out at the deep woods surrounding this CSA (community sustainable agriculture) farm and guest house. Turns out the owners know people I know in Lawrence who do CSA and market garden work, are well-acquainted with the bioregional movement, and subscribe to Permaculture Activist, where I recently had an article.
Scott Momaday, a Native American writer from Oklahoma, gives us another way to consider our identity. Momaday, who was born in Lawton on the Kiowa Reservation, is a Pulitzer-prize winning writer whose novel 

ur mainstream American, or even alternative American construct of time and space. What happened there? I’m not sure although I have some hope that telling you about it will help me know more. Where were we? In some place constant and occasional, ancient and ahead of its time, ceremonial and ordinary, Tennessee and beyond Tennessee. In many ways, the road trip to the congress — all 10 hours of driving plus numerous stops — meant t
unneling into the world in the center of the earth, and now we’re out again, back to the surface, and I have to say I’m just a little heartbroken to be apart from the congress and all of you who were there (as well as all of you who have been there and simply must be there next time and haven’t yet been there but will be there in the future).
others found took us away from our time together; the dancing and singing; the food, which was tasty, but jeez, I seriously missed butter; the long talks heart to heart; the smiles across the circles; the sitting
ow it when I’m there, and especially when I’m not anymore. The circle if the room where I live best. Hearing each person speak — whether in the opening circle when we crowded into the big room, lopsided and earnest, saying our names and where we were from, or later in the spiral of the women’s circle, when we spoke about being a woman, living as a woman’s body at this age — shows me who we really are together, and who I am apart: a part of the circle.
from some place two hours away, complete with accordion and tutus, to sing, dance, and slip down the
nd and youngest in the center; both circles
together, when we crossed over to some common and complex understanding as one, when barriers dissolved and we saw ourselves as being in congress together continually, this meeting a continuation of one that began in ‘84 and will never end, I hope.
spent 13 years spreading bioregionalism through the arts througout Central and South America).
energy of the Mexicans,” and who kept reminding Laura Kuri and me that we were his Ninja Muses because when he first arrived, looking just a little confused, Laura and I leapt up and hugged him, and stood — one of us on each side of him — during the opening circle, telling him we would protect him as Ninja Muses.
after, David and Alberto pressing their foreheads together, crying over the loss of this great and enduring spirit, our own dream of the earth.
* The beautiful site committee and how much they did to make it all work: Greg, Jennifer, Susan, Alayne, Biko, Roberta, and (forgive me, I can’t remember all the names) so many others: THANK YOU!
oned understandings, misunderstandings and eventual clearings, old hurts and new healings, and above all, something that transcends how we live in the non-ceremonial world and shows us how to bring the village we make
Juan-Tomas, Bob, Stephanie, Andy, Albert; Natalie and Nyela (Sadie’s baby); Laura and Helen (from Mexico); Natalie as cat; the fairies arrive on All Species Night; more All Species (note the porcupine); Bea and me; Gesa; Mark, Richard and the bioregional quilt (started in ‘84, quilted by the men); Fabio and Laura with Stephen Gaskin; Ken, Curtis and others; David and Alberto; Leonor from Venezuela; Stephanie and me; the welcome tent; Gary working on Alberto.
A few days ago, I got the most amazing photos via email from my mother, who received them from a second cousin she recently reconnected with, via facebook. Strangely enough, this social networking brought to my screen images vitally important to me from a time long before even televisions, let alone computers. The photos were of my grandparents, taken sometime in the 1930s, long before my grandmother Molly descended into debilitating mental illness, very likely rocket-fueled by a number of tragedies. The sadnesses that overtook her life included the loss of her first child, Irwin, to pneumonia, and the loss of all her brothers and sisters back in Poland to the Holocaust.
grandchild) and long stretches in mental hospitals when her manic depression got the best of her. I also knew Papa, my grandfather, much as he appears in these photos: loving, calm, steady, quiet but holding the family together.
t, his Irwin’s aunt). The woman I only knew as a old woman with a flair for driving my parents crazy and entertaining me by occasionally pretending to be a gorilla is young again, not so crazy yet, and not yet so sad and wounded. I see here who she was just a decade or so after she came to this country from Poland, brought here by her sister Ida, and determined to make a life for herself, and in these photos, happily occupying that life.
It’s a muted year, probably because of the excessive rain, but it’s still beautiful: everything saturated with yellow and gold, brown at the edges and green at the center. Last night, walking in the mist toward the car with neon illuminating the street, I remembered this was the first night of all when I felt that familiar wind, a little cooler than the summer breezes or blasts. All directions I look, I see the green fading tom something else, the gatherings of birds aiming themselves south, the litter of leaves. Welcome, fall! May you come however you will, but show us how much beauty there is in these wabi-sabi moments when we witness passing memory and memories past.
Last night, I read poetry for about 45 minutes to over 120 kind people who left the lush night air to sit in an auditorium at Pittsburg State University. Having just read to very small groups, I was a little surprised (I was hoping maybe I’d have 20), but delighted. Men and women, students and faculty, international students and long time residents listened as I read from each of my four poetry books. I felt a real kinship as I looked into the eyes of people — a young Indian woman, a dark-haired pony-tailed man, another man with a thick white beard, some of the astonishingly good students I had met with earlier in Laura Lee Washburn’s poetry writing seminar. I was also thrilled to see my uncle and aunt-in-laws from Joplin, Missouri, who made the trip. Not only was I was treated to this audience, but we were all treated — thanks to the PSU English Department — to a reception afterwards that even featured a sheet cake that said, “Welcome Poet Laureate.” On my way out with a box of leftover books in hand, two young women from China held the door open for me. One said, “You know, we couldn’t understand all the words, but we really liked your poetry.” The other told me, “With poetry, it’s not the language so much it’s written in because you can feel it,” as she placed her hand on her heart. I couldn’t agree more.
